On August 16th, 2005, Connor was finally diagnosed after a 3 week battle of constant 104.5 fevers. Many DR visits(special thanks to Amy H) for the support during those crazy office visits. We finally were sent to Children's Hospital of Wisconsin and within hours, Connor was given an ECHO and a diagnosis of Kawasaki Disease with multiple giant coronary aneurysms. As a receptionist in a medical clinic, I knew all about the medical terms that were thrown at us the next 11 days of our hospital stay. Every day he could have a heart attack , but thru love, support, and a great Dr and Nurse at Children's, Connors still going strong, all though his heart could fail any day. We dealt with a leg fracture the summer before kindergarten, and in Nov 2015, a brain bleed. He recently started on a BP medication because a CARDIAC CT recently found a huge blod clot in one of the aneurysms. We can never thank our family and friends enough for all love and support thru the years. Many kids like Connor are lucky- early diagnosis and NO heart involvement, but many have heart issues and some don't make it (#MightyMax), but the word needs to spread on getting these kids diagnosed quickly. Please share this message. On January 26th please wear RED in Honor of Connor and all our fellow KD kids out there.
High fever 104.5 for 3 weeks before diagnosis. 2 IVIG and blood transfusions . Multiple giant coronary aneurysms.
Multiple giant coronary aneurysms stable but recently diagnosed with a blood clot in one if the aneurysms so was started on a blood pressure medication so his heart doesn't have to work as hard. Know the symptoms and go with your gut feeling, ask questions. Reach out for support and find other KD Parents. We are all on a journey and we can help other families.