Eli's Story
| At 8 months, Eli was diagnosed with KD.. As a first time parents, it was devastating seeing our baby so sick. Symptoms started off as a extremely high fever 104s and a rash. His Pediatrician sent us out with a viral infection to run its coarse. 7 days past and many office visits, we decided to get a second opinion on him because he started with red eyes and cracked bleeding lips, and fever so high that he had a febrile seizure. Children's Hospital sent us home after they ran blood work, urine, etc. Next day, the ER doctor called and ask me to return asap, they maybe had a diagnosis, but needed to admit him. We get admitted on day 8. Doctors continue running tests trying to rule out, Scarlets Fever, Rocky Mountain Fever, and a couple other. Finally, Day 14 they diagnosed Eli with KD through bloodwork and an echo. He ended up with multiple aneurysms.( one resolved over time and has a slight dilation of the left ventricle with check ups every 6 months with his cardiologist). After 2 rounds of IVIG, he made a remarkable recovery and was released from the hospital 3 days later! This KD consisted of: Irritability, red eyes, rash, fever, strawberry tongue, and cracked/bleeding lips. Fast forward to 3.5 years later at 4.5 years old. Same fever as before, lasting longer than 7 days, same go around as viral infection and doctor prescribed antibiotics and steroids.. neither touched the symptoms. Remained running a very high fever. We finally agreed on a Children's Hospital visit because I'm already freaking out. Children's ran labs. Labs was consistent with KD so we were admitted. After 4 days, he was again diagnosed with KD. (Steriods did effect the outcome of diagnosing his KD this go around but helped him alot regardless if it was prescribed for a different diagnoses.) He was treated within 2 days he was discharged. Heart involvement was the auresym from last KD had grown larger. Thankful after 6 months it has shrunk back down to original size before the 2nd occurrence! Symptoms this time were fever, cracked/bleeding lips, Irritability, joint pain in ankles/knees, and peeling of his fingers. |
Misdiagnosis?
IVIG and Aspirin